Families Living with Chronic Illness and Disability

Interventions, Challenges, and Opportunities
Author: Paul W. Power,Arthur E. Dell Orto
Publisher: Springer Publishing Company
ISBN: 9780826155818
Category: Medical
Page: 290
View: 1065
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Chronic Illness and Disability

Principles for Nursing Practice
Author: Esther Chang,Amanda Johnson
Publisher: Elsevier Health Sciences
ISBN: 0729581616
Category: Medical
Page: 584
View: 7617
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An updated edition of the essential nursing guide to a 21st-century ‘epidemic’. Chronic diseases are the leading cause of death worldwide and, increasingly, nurses in Australia and New Zealand are caring for people with chronic disease and disability across a range of care settings. This new edition of Chronic Illness and Disability: Principles for Nursing Practice is an indispensible tool, helping nursing students and health professionals acquire the knowledge and skills for competent quality care. This highly regarded nursing text remains the only Australia/New Zealand nursing text to provide the holistic framework, principles of practice and models of care essential for nurses caring for individuals and families experiencing chronic illness and disability. Chronic Illness and Disability: Principles for Nursing Practice 2e features new and updated content, including fully revised evidence-based practice and statistics aligned to core learning objectives. Reflective questions in each chapter challenge nurses’ understanding of key nursing principles and practices, and new nursing case studies relate context to practice. This Elsevier nursing book is written by a multidisciplinary team of over 50 expert clinicians and academics. It provides diverse, supportive evidence in the areas of major and common chronic illness and disability, including heart disease, stroke, cancer, asthma, diabetes, obesity, dementia, mental illness and palliative care. - A new chapter promoting discussion of models of care - New focus on chronic illness and disability self-management - New focus on issues faced by families and carers in the adjustment and adaptation to living with chronic illness or disability - Increased focus on the nurses’ role within the multidisciplinary team

A Delicate Balance

Living Successfully with Chronic Illness
Author: Susan Milstrey Wells
Publisher: Da Capo Press
ISBN: N.A
Category: Health & Fitness
Page: 289
View: 8285
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Presents one woman's story of learning to live with a chronic illness and provides medical information and a philosophy of life to help others cope in a similar situation.

Easy for You to Say

Q and As for Teens Living With Chronic Illness or Disability
Author: Miriam Kaufman
Publisher: Firefly Books
ISBN: 1770881263
Category: Health & Fitness
Page: 320
View: 4914
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Practical information for teens and their families. Praise for the previous edition: This very unusual book...is loaded with the kind of information disabled teens often need but may be too embarrassed to ask for. --Booklist The teen years are some of the most demanding. Even the most well-adjusted youth struggles with the intense daily challenges of friends, family, school and wider society. But these problems pale in comparison to those faced by teenagers with a handicap or chronic illness such as spina bifida or cystic fibrosis. "Get over it" or "it's just a phase" is idle advice and little more than offensive. "Easy for you to say," is the teenager's often-heard -- and reasonable -- response. Easy for You to Say profiles the lives of uniquely challenged teens as they work hard to make sense of the world and their places in it. The questions they pose are frank and courageous, many include street language that teens can identify with and readily understand. The issues front and center in their lives are addressed, such as family, doctors and medical issues, friends and dating, school and work, alcohol and street drugs, medications and sexuality. Useful charts give reliable information on medication interactions and side effects. Kaufman is straightforward and honest, and provides solid information. Easy for You to Say to Say addresses issues that often are not easy or pretty. It offers solid practical advice, straight talk and honest answers to questions that many would be too embarrassed to ask.

The Resilient Family

Living with Your Child's Illness Or Disability
Author: Paul W. Power,Arthur E. Dell Orto
Publisher: N.A
ISBN: 9781893732667
Category: Family & Relationships
Page: 185
View: 2697
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For families with a child who has a serious illness or disability, a unique tool by respected rehabilitation counseling experts that focuses on the entire family, shows them how to thrive in the face of burdens that feel unbearable.

Living Well with Chronic Illness:

A Call for Public Health Action
Author: Committee on Living Well with Chronic Disease: Public Action to Reduce Disability and Improve Functioning and Quality of Life,Board on Population Health and Public Health Practice,Institute of Medicine
Publisher: National Academies Press
ISBN: 0309221277
Category: Medical
Page: 350
View: 2824
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In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

Coping with Chronic Illness


Author: H. Norman Wright,Lynn Ellis
Publisher: Harvest House Publishers
ISBN: 0736937463
Category: Health & Fitness
Page: 240
View: 3143
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Nearly 1 in 2 Americans suffer from some chronic condition--either an illness like fibromyalgia or conditions such as migraine headaches or chronic neck and back pain. With numbers like these, it's fair to say we have a health crisis on our hands. Respected therapist H. Norman Wright, along with Lynn Ellis, a researcher with firsthand experience with fibromyalgia, lupus, and chronic fatigue, shares practical, hopeful answers for those who suffer from what are often called "invisible illnesses." Readers will benefit from realizing they are not alone even if others don't understand what they are experiencing. They will also find helpful ideas for managing relationships with their doctors and their families insight into God's perspective and caring for those who suffer practical ways to manage the stress, fear, and depression that often comes with chronic illness Coping with Chronic Illness is the perfect resource for those who struggle as well as for their families and friends, lay counselors, medical professionals, and pastors.

Estate Planning for People with a Chronic Condition or Disability


Author: Martin M. Shenkman, CPA, MBA, JD
Publisher: Demos Medical Publishing
ISBN: 9781935281078
Category: Law
Page: 1120
View: 8527
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This is the first comprehensive estate-planning guide for those living with a chronic disease or disability. This book is targeted at those planning for the disbursement of their estates, no matter their size. Estate-planning is crucial for those living with a chronic disease or disability: individuals must express their preferences whether to receive long-term care at home rather than in a nursing home in the event that they become more disabled, and it is more important for one who has a chronic illness to name a power of attorney. Estate Planning for People with a Chronic Condition or Disability covers all of those topics plus: How to write your will How to determine how much life insurance your family needs How to figure out whether you need a living trust Learn about powers of attorney When to work with a lawyer, if you need to The book also includes downloadable sample forms for: Power of Attorney Living Will Designation of Proxy for Financial and Health Decisions

You Don't Look Sick!

Living Well With Chronic Invisible Illness
Author: Joy H. Selak,Steven S. Overman, MD
Publisher: Demos Medical Publishing
ISBN: 1936303426
Category: Biography & Autobiography
Page: 170
View: 3693
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Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

Coping with Chronic Illness and Disability

Theoretical, Empirical, and Clinical Aspects
Author: Erin Martz,Hanoch Livneh
Publisher: Springer Science & Business Media
ISBN: 0387486704
Category: Psychology
Page: 430
View: 5090
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This book synthesizes the expanding literature on coping styles and strategies by analyzing how individuals with CID face challenges, find and use their strengths, and alter their environment to fit their life-changing realities. The book includes up-to-date information on coping with high-profile conditions, such as cancer, heart disease, diabetes, arthritis, spinal cord injuries, and traumatic brain injury, in-depth coverage of HIV/AIDS, chronic pain, and severe mental illness, and more.

Living with chronic illness

the experience of patients and their families
Author: Robert Anderson,Michael Bury
Publisher: N.A
ISBN: 9780043620663
Category: Medical
Page: 265
View: 8818
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Life Disrupted

Getting Real About Chronic Illness in Your Twenties and Thirties
Author: Laurie Edwards
Publisher: Bloomsbury Publishing USA
ISBN: 0802779735
Category: Self-Help
Page: 288
View: 531
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Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Young People and Chronic Illness

True Stories, Help, and Hope
Author: Kelly Huegel
Publisher: Free Spirit Pub
ISBN: 9781575420417
Category: Juvenile Nonfiction
Page: 199
View: 6923
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Presents true accounts of young people living with a chronic illness including how they have learned to cope and remain hopeful; also includes strategies for living with a chronic medical problem.

Young, Sick, and Invisible

A Skeptic's Journey with Chronic Illness
Author: Ania Bula
Publisher: Pitchstone Publishing (US&CA)
ISBN: 1634310748
Category: Biography & Autobiography
Page: 224
View: 6580
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Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing—or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even “faith healed.” With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness—and to help those who might similarly suffer feel less alone, so that they too might start living again.

Understanding Psychosocial Adjustment to Chronic Illness and Disability

A Handbook for Evidence-Based Practitioners in Rehabilitation
Author: Dr. Elizabeth Da Silva Cardoso, PhD,Dr. Julie A. Chronister, PhD
Publisher: Springer Publishing Company
ISBN: 9780826123879
Category: Psychology
Page: 604
View: 8050
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Rehabilitation practitioners face the difficult task of helping clients adjust to chronic illness or disability. This can be a long and trying process for both practitioner and client. With this handbook, however, practitioners and students can gain a wealth of insight into the critical issues clients face daily. This book presents the dominant theories, models, and evidence-based techniques necessary to help the psychosocial adjustment of chronically ill or disabled persons. Each chapter is written from an evidence-based practice (EBP) perspective, and explores how important issues (i.e., social stigma, social support, sexuality, family, depression, and substance abuse) affect persons adjusting to chronic illness and disability. Key features include: A review of psychopharmacological treatment options for depression, anxiety, and other disorders coinciding with rehabilitation The effect of rehabilitation on the family, including key family intervention strategies Strategies for using positive psychology and motivational interviewing in rehabilitation Multiculturalism and the effect of culture on the adjustment process Ancillary materials including an instructor's manual with a syllabus, examination items, PowerPoint presentation, and answers to class exercises By incorporating research-based knowledge into clinical rehabilitation practice, health care professionals can ensure that people with chronic illness and disability receive only the best treatment.

Surviving and Thriving with an Invisible Chronic Illness

How to Stay Sane and Live One Step Ahead of Your Symptoms
Author: Ilana Jacqueline
Publisher: New Harbinger Publications
ISBN: 1626256012
Category: Health & Fitness
Page: 208
View: 9172
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“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

Living With Chronic Illness and Disability

Principles for Nursing Practice
Author: Esther Chang,Amanda Johnson
Publisher: Elsevier
ISBN: 9780729542616
Category:
Page: 584
View: 1436
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The Psychological and Social Impact of Illness and Disability, Fifth Edition

5th Edition
Author: Arthur E. Dell Orto, PhD, CRC,Paul W. Power, SCD, CRC
Publisher: Springer Publishing Company
ISBN: 082610309X
Category: Social Science
Page: 760
View: 4650
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The newest edition of The Psychological and Social Impact of Illness and Disability continues the tradition of presenting a realistic perspective on life with disabilities and then improves upon its predecessors with the inclusion of illness as a major influence on client care needs. Articles included represent the best of developing concepts, theory, research, and intervention approaches. Classic articles kept from previous editions round out a diversity of viewpoints that will enrich student understanding of what is important in beginning rehabilitation practice. Further broadening the scope of this edition is the inclusion of personal perspectives and stories from those living with illness or disabilities. These stories offer a glimpse into what it is like to cope day to day with these issues and direct examples of how effective current care models and rehabilitation theories can be. Relevant, expert articles plus insightful narratives combine to offer a bridge between theory and reality and guide students and professionals in rehabilitation practice closer to their goal of enhancing the quality of life for all individuals.

Living a Healthy Life with Chronic Conditions

Self-Management of Heart Disease, Arthritis, Diabetes, Depression, Asthma, Bronchitis, Emphysema and Other Physical and Mental Health Conditions
Author: Kate Lorig,Halsted Holman,David Sobel
Publisher: Bull Publishing Company
ISBN: 1936693453
Category: Health & Fitness
Page: 390
View: 2946
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Completely redesigned for easy reading and fully updated with the latest research and information on current practice, medication, legal matters, and specific conditions, this new edition of a vital resource is full of tips, suggestions, and strategies to deal with chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support so that they are able to do the things they want and need. Originally based on a five-year study conducted at Stanford University, this work has grown to include the feedback of medical professionals and people with chronic conditions all over the world. Aimed at letting people become self-managers of their own illness, this book's one simple goal is to help anyone with a chronic illness to live a productive, healthy life.

How to Live Well with Chronic Pain and Illness

A Mindful Guide
Author: Toni Bernhard
Publisher: Simon and Schuster
ISBN: 1614292639
Category: Health & Fitness
Page: 352
View: 2563
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Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.